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When someone is diagnosed with mesothelioma, it doesn’t just affect the patient, but also their loved ones, leaving a trail of emotional and financial hardship. In this article, let’s explore the struggles faced by families dealing with mesothelioma, and see guidance on coping mechanisms and available support systems.
Mesothelioma and Its Causes
Mesothelioma is a type of cancer that forms in the thin tissue layer surrounding organs, most often the lungs. It can also develop in the abdomen, heart, or testicles. This deadly disease is primarily linked to long-term exposure to asbestos, a heat-resistant mineral once used in various industries like construction and manufacturing.
Many people who developed mesothelioma were exposed to asbestos in their workplaces, such as shipyards, construction sites, or factories, often without realizing the danger. The insidious nature of asbestos exposure means that symptoms can take decades to appear, leading to late-stage diagnoses.
By the time mesothelioma is detected, it’s frequently advanced, limiting treatment options and casting uncertainty over the future. The sudden onset of severe symptoms and a terminal diagnosis can leave families devastated, struggling to understand the full impact of this aggressive disease.
The Emotional Impact
A mesothelioma diagnosis can be a devastating blow to a family. The shock, fear, and grief that come with it can be a lot to handle. Families often mourn the loss of their loved one’s health and vitality, while coping with the uncertainty of the future. The emotional toll can be immense, leading to anxiety, depression, and anger.
The ones who are looking after may feel stunned by the constant demands of caregiving, work, and family life. They may feel isolated and frustrated, struggling with feelings of guilt and inadequacy. Children are also deeply affected by a parent’s or loved one’s diagnosis. They may be confused, scared, or even angry, and struggle to understand what is happening. With open and honest communication, tailored to their age, you can help children express their emotions and feel more secure.
Financial Challenges
The financial impact of mesothelioma is often another major burden on families. Treatment for mesothelioma typically involves costly procedures such as:
- Surgery
- Chemotherapy
- Radiation
- Specialized medications
In addition to treatment costs, many patients with mesothelioma are unable to continue working, leading to lost income. Caregivers may also need to take time off work or reduce their hours, further reducing household income. For many families, this combination of rising expenses and reduced income can lead to financial strain, forcing difficult decisions around daily living expenses, future plans, and additional support needs.
Can You Get Compensation?
Families whose loved ones have been diagnosed with mesothelioma may be eligible for financial compensation. This is because asbestos exposure is often linked to negligence in the workplace or a failure to disclose the dangers of asbestos.
Legal options for affected families include filing a personal injury lawsuit, a wrongful death claim, or seeking compensation from asbestos trust funds. Receiving compensation can provide much-needed financial relief, helping to cover the high costs of medical care, lost wages, and ongoing support. There are several services like Mesothelioma Hope that provide resources on specialists, financial assistance, and more.
How You Can Find Emotional Support and Cope
Facing mesothelioma demands immense emotional strength, honest conversations, and a robust support system. The disease’s impact can make families feel incredibly alone, especially if they don’t know anyone else going through this. Connecting with other families affected by mesothelioma, whether through online communities, local support groups, or counseling, can offer a sense of belonging and shared understanding.
Therapy and counseling can be incredibly helpful for both patients and their loved ones. Individual therapy helps family members work through their feelings and learn healthy ways to manage stress. Family therapy promotes open communication and unity, addressing any potential conflicts. For children and teens, specialized counseling provides a safe space to express their worries and fears in a way that’s right for their age.
Thank you,
Glenda, Charlie and David Cates
